Rare But Not Alone
Rare But Not Alone

Join us in this welcoming space for families who care for someone with a rare disorder (diagnosed or not). Rare disorders and conditions affect a small number of people in the country or even the world. Living with a rare disorder or condition can feel invisible and isolating, and sometimes there are seemingly no answers. But it doesn’t have to be scary all of the time—especially if you have others beside you! Join our supportive group and find strength in numbers as we share stories, connect with others who understand, and build upon our supportive networks.
Family Support Institute of BC (FSI) is a provincial not-for-profit society committed to supporting families who have a family member with a disability. FSI is unique in Canada and the only grassroots family to family organization that has a broad volunteer base. FSI SUPPORTS AND SERVICES ARE FREE TO ANY FAMILY FSI is committed to making our events as accessible as possible to everyone who wants to attend. If you have accessibility needs, please let us know when you register, or send us an email to discuss your specific needs. Sign language (ASL) interpretation can be available with 3 weeks notice. Please identify that you require ASL when you register.